Recruitment for LongSTEPPP is now open.

What is LongSTEPPP?

LongSTEPPP stands for the Longitudinal Study of Teenagers with Endometriosis, Period and Pelvic Pain in Australia and is a 5-year study starting in 2022.

We believe that periods shouldn't ruin your life.

We are trying to find out how to best care for young people experiencing period or pelvic pain and endometriosis.

Most young people who have periods will experience some pain. For some people, this is manageable and will not change normal everyday activities. For others, the pain they experience will stop them from doing everyday activities and may impact their quality of life and mental health.

We believe that period and pelvic pain can be managed to prevent chronic pain and endometriosis. We want to measure and track, periods, pain, quality of life and mental health in young people affected by period or pelvic pain and endometriosis.

The LongSTEPPP project is led by the Murdoch Children’s Research Institute (MCRI). LongSTEPPP combines yearly questionnaires with information collected by other services. This means it takes only a few hours of your time each year.

Who can take part?

You may be eligible to take part in this study if you:

• Are aged between 10 -18 years

• Experience period pain, pelvic pain or endometriosis

• Have been referred to Gynaecologist (a doctor who specialises in women’s health)

• Live in Australia

We are currently recruiting young people and their parents/guardians to join LongSTEPPP.

Who cannot take part?

• If you have already seen a Gynaecologist

What will I be asked to do?

• Complete up to 8 questionnaires in the first year

• Complete between 6 to 7 questionnaires yearly for up to 5 years or until the end of 2027

• OPTIONAL: Young people and their female parent/guardian enrolling at some sites (Melbourne, Sydney, Brisbane) can participate in pain-orientated sensitivity testing.

• The parent/carer of the young person will be asked to complete 3 questionnaires yearly.

To register your interest, follow the link below:

How can I find out more?

If you have any questions about the project or would like more information, please contact Dr Courtney Munro by email at longsteppp@mcri.edu.au or phone 0450 707 234.

Contact Us:

Phone: 0450 707 234

Email: longsteppp@mcri.edu.au

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Grant Funders:

The work of this team is supported by a grant for the Medical Research Future Fund.

Our Team:

Study Investigators: Professor Sonia Grover
Project Coordinator: Dr Courtney Munro