Hi, my name is Alisha. I’m a 34 year old single mum to my 8 year old son, and we live on Straddie — an island off Brisbane. I enjoy spending time at the beach, camping, travelling and walking in nature.

I was diagnosed with Endometriosis in 2016 — 12 years after my symptoms first began. For five years, I experienced debilitating symptoms and was repeatedly told by GPs that “period pain” was normal before I even heard the word Endometriosis. What followed were years of self-advocating, pushing for answers, and navigating a health system that often left me feeling unheard, misunderstood, and unsupported — even after receiving diagnoses.

I have had three laparoscopies. My first surgery was ablation, followed by two excision surgeries with endometriosis specialists.

Alongside my Endometriosis journey, I have also been diagnosed with Axial Spondyloarthritis, Coeliac Disease, ADHD, Fibromyalgia, Central Sensitisation, chronic pelvic and back pain, and suspected Adenomyosis.

Living with Endometriosis and chronic illness for me has meant learning to adapt to constantly changing symptoms and finding new ways to manage daily life.

I understand the emotional toll invisible illness can have and how deeply isolating it can feel. I am passionate about the need for greater understanding, increased awareness, and more accessible support for women living with Endometriosis and pelvic pain.

Through my lived experience and deep passion for helping others, I will stand beside you with empathy and compassion, supporting you as you navigate life with Endometriosis and pelvic pain. I believe no one should have to walk this path alone.

Like most of us, I’ve had a long journey with endometriosis including twists and turns and complications. I was first diagnosed aged 27, through laparoscopy, after experiencing symptoms for years that were dismissed by GPs. I had a second surgery about 5 years later.

I struggled with other interventions – I forgot to take medications, I couldn’t for the life of me track my cycle and plan accordingly, and I’d forget what doctors recommended almost as soon as I walked out the door. Turns out, I was also dealing with undiagnosed ADHD.

I had some relief after both laparoscopies, but steadily the pain grew worse again and combined with the failure of other treatments, I decided to go through with a total hysterectomy in 2019.

Again, I was OK for a little bit but then I started experiencing other symptoms. Queue referral to rheumatologist and eventual diagnosis with fibromyalgia, which in my case, the rheumatologist put down to the repeated surgeries and chronic pain of endo.

But that wasn’t all! Turns out I also still had endo on my bowel, which was able to continue to grow due to the hormone therapy I was prescribed post-hysterectomy. So I had surgery again for that last year.

Now I’m focusing on living as best I can within my energy and pain limitations, making art in my ceramics studio, and advocating for others living with chronic pain and invisible illness.

I am Daniela, originally from Brazil and now based in Australia. My journey with endometriosis and adenomyosis began when I was very young, living for many years with heavy periods, chronic pain and the uncertainty that often comes with not feeling heard or understood. Over time, surgeries, recurring symptoms and personal loss shaped my understanding of how deeply chronic illness can affect not only the body, but also confidence, identity and emotional wellbeing.

These experiences led me to seek connection and support, and today they inspire my work as a mentor. I am currently studying counselling and value creating a calm, respectful and non-judgmental space where people can feel safe to share their experiences, feel heard, and move forward at their own pace. I believe mentoring is about walking alongside someone and helping them feel less alone in their journey.

Hi I'm Amanda and I'm a single mum to a 12yo daughter who lives in Central Victoria. My endo journey has been a long and bumpy road, but I am in a really good place now to be able to support others and share my story. I first experienced symptoms in 2010 after stopping the contraceptive pill which I had been on for more than 10 years. The symptoms hit me like a tonne of bricks, and I'd never experienced anything like it before. Thankfully for me it took less than 12 months to get a diagnosis via a laparoscopy here in my hometown. The gynaecologist who did the surgery told me he opened me up, saw what was going on and promptly closed me up again before referring me straight to an amazing endo specialist in Melbourne who did my first major surgery a few months later. I will forever be grateful to the original doctor being honest and telling me I was one of the worst cases he had ever seen in his career and no one locally was skilled enough to treat me.

Since then, I have had several more surgeries including a bowel disc resection, a left oophorectomy and a total hysterectomy, been placed in medically induced menopause, struggled with infertility, tried more alternative therapies than I can count, taken more medications than I can remember and been to an endless number of doctor and specialist appointments. I have made friends through my illness, lost friends because of my illness and mourned the life I once lived because things have changed so much.

Everything I have been through has given me a wealth of knowledge I can now use to help and support others on their journey. It has also shown me that I have a strength and resilience I never realised existed. That's why this program means so much to me and why I have continued to be a part of it since 2019 when I was first appointed a mentee. I hope I can help you feel less alone, less overwhelmed and less scared of the unknown by being there for you too.

I'm Kylie Kotiah, I'm passionate about empowering women through connection, self-awareness, and growth. 

My journey has been shaped by navigating both personal and professional challenges with resilience, curiosity, and a deep belief in the power of mentorship. 

I bring a grounded, intuitive approach to mentoring ,offering support, insight, and space to evolve authentically. 

I'm excited to walk alongside mentees as they uncover clarity, confidence, and direction in their own unique path.

My name is Gill, I am 44, a wife, mum of two and an endo registered nurse.

My own lived experience with chronic illness has deeply shaped my career and my purpose. Diagnosed with Stage 4 Endometriosis at 27 after years of painful, isolating symptoms, I intimately understand the emotional toll these conditions can take. I have walked the road of uncertainty, fertility challenges, surgery, grief, and ultimately, the incredible blessing of welcoming two children into my life.

These personal experiences have made me deeply committed to ensuring that no one feels alone in their journey.

My name is Maggie and I am a wife, dog mum and a mental health nurse. I live with and manage symptoms of adenomyosis and endometriosis, which often melds well with the ADHD brain. Living with these conditions, and the late diagnosis of ADHD, has shaped my resilience and strengthened my commitment to supporting others through shared experience. I try to maintain balance through my array of hobbies and current hyper-fixations to better support my overall wellbeing.

#mentalhealthadvocate #gamergirl #chaoscoordinator #hobbyenthusias

I am a mum, advocate and supporter of people navigating endometriosis, infertility and pregnancy loss 

After being diagnosed with endometriosis with little prior understanding of the condition, I turned to QENDO as a source of connection, knowledge and strength. Through doing this, I found comfort in knowing I wasn’t alone and learned how to better advocate for myself within the healthcare system.

I have experienced infertility, multiple pregnancy losses and an IVF journey that has given me the gift of my beautiful daughter. These experiences have shaped my compassion and understanding knowing firsthand how complex, emotional and exhausting the fertility journey can be. Balancing motherhood with self-care has been a great challenge for me. I am passionate about empowering others to honour their own needs whilst also caring for others.

Outside of mentoring I work part-time in a library and enjoy writing, reading and family time. I am deeply committed to advocacy and hope to provide a safe non -judgemental space for mentees to share their stories and gain confidence in navigating their own path.

#IVFJourney #Reading #YouAreNotAlone

Hi, I’m an Endo sister living with endometriosis and adenomyosis, diagnosed in 2012. My journey has taken me on a path of managing chronic symptoms, recovery, and navigating peri-menopause.

Along the way, I’ve learned how powerful it is to truly listen to my body and advocate for my own health. I’m here to share, support, and walk alongside other Endo warriors on this path—because none of us should have to do this alone

#Endosister #Nourishtoheal #Endomentor #movementismedicine  #Anti-inflammatoryliving 

My name is Aline I came from Brazil originally about 13 years ago.

I’m driven to succeed and constantly strive for self-improvement. I’m versatile, flexible, and open to trying new things.

My background is working about 22 years in Health counting both work in Brazil and Australia; I’ve also been a qualified fitness instructor for some time. I have one child, 9 years old and am married. Currently working in a Hospital Orthopaedics Department.

I love being outdoors, exercising, and going out for a nice dinner. I love the beach and also camping. I love to learn new things, especially things related to health. I enjoy teaching people what I know and learning from others what I don’t know. I practise yoga and am constantly stretching and doing hot studio exercise.

I have stage 4 endometriosis and adenomyosis; it was discovered about 5 years ago, and I believe I have a good bit of knowledge about endo from doing courses, reading and my own lived experience. I have been through IVF as well as ectopic pregnancy.

I’m looking for to meeting you and sharing my experiences. Please reach out so we can have a great chat and help each other to learn more about how to fight endo.

I’m a 24-year-old User Experience Designer working at the Department of Health. After nearly a decade of pain and dismissal, I was diagnosed with stage 3 endometriosis in January 2024.

Hormonal birth control hasn’t been the right fit for me, so I’ve spent time learning how to manage my symptoms through non-hormonal approaches such as nutrition, supplements, and gentle movement. I’m passionate about sharing what I’ve learned and supporting others as they navigate their own endometriosis journeys.

#reading #design #crochet #painting #food #dogs 

Hi my names Izzy, I’m 21 with stage 2 endometriosis. I was 19 when I got diagnosed with endometriosis and had to prove to every doctor by taking multiple different birth controls that there was an issue I had to wait 6 years for a diagnosis. I am a support worker and currently studying my bachelor of psychology!

I am always reminding those around me that they are enough, their health is important. Their feelings are valid and that they are always right when it comes to their health and their journey! 

I’m a 36yo mum of two living with endometriosis, adenomyosis and chronic migraines. My symptoms began at the very early age of 11, to which back then were passed off as IBS or anxiety. As I got older and struggled my way through increasing pain, I navigated many career obstacles as a result of my unpredictable health. Doctors continued dismissing my symptoms and I simply had enough. Fast forward a number of years and advocating HARD, I finally received my diagnosis via laparoscopy. I have since had 4 surgeries in total plus a recent hysterectomy. I have also returned to university in my 30’s where I am completing my Masters degree to become a Women’s Health Counsellor in the Endometriosis space (because our mental health matters!) . Endo can take so much from us. Remember we live with chronic pain, but we are not THE chronic pain. With the right support from this fantastic program paired with my own lived experience - we can connect, exchange handy hints, and face this bravely together x

#endometriosis #adenomyosis #chronicmigraine #hysterectomy #work&studybalance #university #parenting #mental health #mumguilt #careers&endo #mumswithendo

I am Shreya, I am in my 30s. I have lived and worked in Queensland for the last 9 years and I am originally from India, having studied and worked in India, the UK, Korea before coming to Australia. 

I enjoy knitting, cooking, going for hikes, going to the beach and camping. I have always been passionate about teaching and learning, and I enjoy working with others and sharing what I have learnt through my experiences, sometimes cautionary tales, sometimes lessons and sometimes providing a kind ear to listen.

On a more self-reflective view on my own illness, I was diagnosed with endometriosis in 2022 and as my fellow endo folks, I have been through multiple treatments and options before choosing a more holistic approach to manage my symptoms. I want to be able to share ideas and hold someone’s hand with reassurance to guide us through this journey.

Finally, I like people, I enjoy their company and the short or long interactions always bring me immense joy and I want to be able to channel that in a sustained and active way by being a QENDO mentor. 

#advocacy #endoadvocate #chronicpainawareness #nature #happycamper #comfyclothes #slowhealing #holistichealing #alwayslearning

Hi, I’m Bri

Hi, I’m Sadie

Hi, I’m Kate

Hi, I’m Candice!