QENDOCare Research Privacy Statement
Who We Are
The Council of the Queensland Institute of Medical Research, trading as QIMR Berghofer (“we,” “us,” or “our”), is committed to protecting your privacy in accordance with the Information Privacy Act 2009 (Qld). This notice outlines how we collect, use, store, and disclose your personal information as a participant in our research projects. For further details, please refer to our Privacy Policy.
Why We Collect Your Information
QIMR Berghofer collects personal information from research participants to conduct medical research, manage and administer research projects, comply with legal and ethical obligations, communicate with you about the research, and ensure the integrity and quality of our research activities.
Types of Personal Information We Collect
We may collect information such as your name, contact details, demographic information, health and medical history, responses to research questionnaires or interviews, biological samples, and any other information necessary for the research project.
How We Collect Information
Where possible, we collect personal information directly from you. In some cases, information may be collected from your healthcare providers, research collaborators, or from publicly available sources, but only with your consent or as permitted by law.
Legal Basis for Processing
We collect and use your information only where:
You have provided informed consent to participate in the research;
It is necessary to comply with legal or regulatory obligations; or
It is required for purposes related to public interest in scientific research, subject to appropriate safeguards.
Disclosure of Information
We may share your information with:
Research collaborators and service providers assisting with the project (e.g., laboratories, data analysts);
Ethics committees and regulatory bodies (as required for research oversight);
Government authorities (if required by law).
Where possible, information will be de-identified before sharing.
Data Breach Notification
If a data breach occurs that is likely to cause harm, we will notify you and the Queensland Office of the Information Commissioner (OIC) as required by law.
Access and Correction
You have the right to:
Request access to your personal information held by us;
Request correction of any inaccurate or incomplete details.
To exercise these rights, contact our Privacy Officer at PrivacyOfficer@qimrberghofer.edu.au.
Complaints
If you believe your privacy has been breached, please contact our Privacy Officer. You may also lodge a complaint with the Queensland OIC:
Office of the Information Commissioner
Website: www.oic.qld.gov.au Phone: 07 3234 7373
Consequences of Not Providing Information
Participation in research is voluntary. If you choose not to provide certain information, you may not be able to participate in the research project or we may not be able to include your data in our analysis.
Retention Period
We retain your information only for as long as necessary to meet the research objectives, legal, and ethical requirements.
Contact Us
For any privacy-related inquiries, please contact:
Privacy Officer
Email: PrivacyOfficer@qimrberghofer.edu.au
Locked Bag 2000
Royal Brisbane Hospital QLD 4029
300 Herston Rd
Herston QLD 4006 Australia
Tel +61 7 3362 0222
Fax +61 7 3362 0111